Principles and practice in biobank governance / edited by Jane Kaye, Mark Stranger.

Format
Book
Language
English
Published/​Created
Farnham, Surrey ; Burlington, VT : Ashgate, [2009], ©2009.
Description
xxii, 292 pages : illustrations ; 24 cm

Availability

Copies in the Library

Location Call Number Status Location Service Notes
ReCAP - Remote StorageRD127 .P76 2009 Browse related items Request

    Details

    Subject(s)
    Bibliographic references
    Includes bibliographical references and index.
    Contents
    • What benefit sharing arrangements do people want from biobanks? A survey of public opinion in Australia / Dianne Nicol and Christine Critchley
    • Reconsidering altruism, introducing reciprocity, and empowerment in the governance of biobanks / Nadja Kanellopoulou
    • From benefit sharing to power sharing : partnership governance in population genomics research / David E. Winickoff
    • Co-determination of donors in biobanks / Lukas Gundermann and Ulrich Stockter
    • Developing an appropriate consent model for biobanks : in defence of "broad" consent / Margaret Otlowski
    • Consent by research ethics committees : the new law on biomedical research in Spain / Antonio Casado da Rocha and Ismael Etxeberria Agiriano
    • Addressing the ethical objections to pediatric biobanks / Kristien Hens and Kris Dierickx
    • Deciding whether to participate in a biobank : the concerns of healthy volunteers / R. Jean Cadigan and Arlene M Davis
    • Privacy interests in biobanking : a preliminary view on a European perspective
    • David Townend ... [et al.]
    • Feeding back significant findings to participants and relatives / Loane Skene
    • Ensuring participant privacy in networked biobanks / Atieh Zarabzadeh ... [et al.]
    • hSERN : a tool to help researchers with the legal requirements of cross-border exchange of biological material / Emmanuelle Rial-Sebbag ... [et al.]
    • Biobanking networks : what are the governance challenges? / Jane Kaye
    • Potential conflicts in governance mechanisms used in population biobanks / Karine Bédard ... [et al.]
    • UK biobank ethics and governance council : an exercise in added value / Martin Richards, Adrienne Hunt and Graeme Laurie
    • The end of individual control over health information : promoting fair information practices and the governance of biobank research / Trudo Lemmens and Lisa Austin
    • From public inquiry to policy : biobanks, population genetics and the public interest / David Weisbrot.
    ISBN
    • 9780754678250 (hardcover)
    • 0754678253 (hardcover)
    LCCN
    2009030145
    OCLC
    429472462
    RCP
    C - S
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