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Principles and practice in biobank governance / edited by Jane Kaye, Mark Stranger.
Format
Book
Language
English
Published/Created
Farnham, Surrey ; Burlington, VT : Ashgate, [2009], ©2009.
Description
xxii, 292 pages : illustrations ; 24 cm
Availability
Copies in the Library
Location
Call Number
Status
Location Service
Notes
ReCAP - Remote Storage
RD127 .P76 2009
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Details
Subject(s)
Tissue banks
—
Management
[Browse]
Biobanks
—
Management
[Browse]
Tissues
—
Collection and preservation
—
Government policy
[Browse]
Biological specimens
—
Collection and preservation
—
Government policy
[Browse]
Procurement of organs, tissues, etc
—
International cooperation
[Browse]
Bioethics
[Browse]
Related name
Kaye, Jane, 1962-
[Browse]
Stranger, Mark
[Browse]
Bibliographic references
Includes bibliographical references and index.
Contents
What benefit sharing arrangements do people want from biobanks? A survey of public opinion in Australia / Dianne Nicol and Christine Critchley
Reconsidering altruism, introducing reciprocity, and empowerment in the governance of biobanks / Nadja Kanellopoulou
From benefit sharing to power sharing : partnership governance in population genomics research / David E. Winickoff
Co-determination of donors in biobanks / Lukas Gundermann and Ulrich Stockter
Developing an appropriate consent model for biobanks : in defence of "broad" consent / Margaret Otlowski
Consent by research ethics committees : the new law on biomedical research in Spain / Antonio Casado da Rocha and Ismael Etxeberria Agiriano
Addressing the ethical objections to pediatric biobanks / Kristien Hens and Kris Dierickx
Deciding whether to participate in a biobank : the concerns of healthy volunteers / R. Jean Cadigan and Arlene M Davis
Privacy interests in biobanking : a preliminary view on a European perspective
David Townend ... [et al.]
Feeding back significant findings to participants and relatives / Loane Skene
Ensuring participant privacy in networked biobanks / Atieh Zarabzadeh ... [et al.]
hSERN : a tool to help researchers with the legal requirements of cross-border exchange of biological material / Emmanuelle Rial-Sebbag ... [et al.]
Biobanking networks : what are the governance challenges? / Jane Kaye
Potential conflicts in governance mechanisms used in population biobanks / Karine Bédard ... [et al.]
UK biobank ethics and governance council : an exercise in added value / Martin Richards, Adrienne Hunt and Graeme Laurie
The end of individual control over health information : promoting fair information practices and the governance of biobank research / Trudo Lemmens and Lisa Austin
From public inquiry to policy : biobanks, population genetics and the public interest / David Weisbrot.
Show 15 more Contents items
ISBN
9780754678250 (hardcover)
0754678253 (hardcover)
LCCN
2009030145
OCLC
429472462
RCP
C - S
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Principles and practice in biobank governance / edited by Jane Kaye, Mark Stranger.
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