Oxford textbook of palliative care for children / edited by Ann Goldman, Richard Hain, Stephen Liben.

2nd ed.
Oxford ; New York : Oxford University Press, 2012.
xi, 500 p. : ill. (some col.) ; 29 cm.


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Summary note
"The first edition of this book was the first authoritative, systematic and comprehensive text to define the increasingly important and evolving specialty of paediatric palliative care. It explores both the clinical aspects and the multidimensional and holistic nature of care for the dying child, based on the knowledge that all human experience has a physical, emotional, psychological and spiritual impact. The book covers ways of providing support in all of these areas both for the child, families, and carers, recognising the importance of teamwork and taking an evidence-based approach. The Oxford Textbook of Palliative Care for Children is about the care of children for whom cure of their underlying disease is not possible. It encompasses the physical management of symptoms such as pain and nausea, as well as social issues such as accessing appropriate education, emotional issues such as techniques for communication, and spiritual issues such as feelings of guilt and isolation. The book suggests that if we are to maintain the quality of life for a child it is essential to recognise all these dimensions and try to address them. This can only be done by recognising the skills of a wide range of professionals and working together in ways that are not always intuitive to any one discipline. It explores the multidimensional and holistic nature of care for the dying child. Those working in paediatric palliative care recognise that all human experience has emotional, psychological and spiritual impact as well as physical, and this book offers the essential information needed for those involved in paediatric care to find ways of providing support in all of these areas. Comprehensive in scope, exhaustive in detail, and definitive in authority, this second edition has been thoroughly updated to cover new practices, current epidemiological data and the evolving models that support the delivery of palliative medicine to children. Paediatric palliative care is now developing in countries with differing health care systems, and being adapted to suit individual illnesses and the varying resources and geography in different parts of the world. This book is an essential resource for anyone who works with children worldwide."--Publisher's website.
Bibliographic references
Includes bibliographical references and index.
History and epidemiology / Katrina McNamara-Goodger and Chris Feudtner -- The child's journey: Transition from health to ill-health / Jenny L. Hynson -- Communication / Jennifer W Mack and Stephen Liben -- Ethics / Vic Larcher and Frank Carnevale -- Through the creative lens of the artist: Society's perceptions of death in children / Sandra Bertman -- The power of their voices: asessing the child and family / Nancy Contro and Sarah Scofield -- Children's views of death / Myra Bluebond-Langner and Megan Nordquest Schwallie -- The psychological impact of life-limiting conditions on the child / Jan Aldridge and Barbara M Sourkes -- Adolescents and young adults / Finella Craig and Victoria Lidstone -- Children expressing themselves / Trygve Aasgaard and Melinda Edwards -- Education and school / Erica Brown -- Impact on the family / Susie Lapwood and Ann Goldman -- Spirituality and meaning in children, families, and clinicians / Robert Macauley and Cynda Hylton Rushton -- Around the time of death - culture, religion and ritual / Erica Brown and Frances Dominica -- Bereavement / Sara Portnoy and Di Stubbs -- Symptoms in life-threatening illness: overview and assessment / Dilini Rajapaske and Maggie Comac -- Using medications in children / Nigel Ballantine and Elizabeth Bing Daglish -- Introduction to pain / Antoine Bioy and Chantal Wood -- Pain assessment / Anne Hunt -- Pharmacological approaches to pain: 'By the ladder' - the WHO approach to management of pain in palliative care / Richard D. W. Hain, Ross Drake, and Stefan J. Friedrichsdorf -- Pharmacological approaches to pain: Simple analgesics and opioids / Ross Drake, Stefan J. Friedrichsdorf and Richard D. W. Hain -- Pain: Adjuvants for neuropathic and bone pain / Renee McCulloch -- Pain: An integrative approach / Leora Kuttner -- Management of the gastro-intestinal tract in paediatric palliative medicine / Mike Miller and Marek Karwacki -- Feeding in palliative care / Angela Thompson, Anita MacDonald, and Chris Holden -- Neurological and neuromuscular conditions and symptoms / Julie M. Hauer and Kate W. Faulkner -- Depression, anxiety, and delirium / Anna C. Muriel, Renee C. V. McCulloch, and Jim F. Hammel -- Respiratory symptoms / Lynda Brook, Emma Twigg and Amanda Venables -- Skin symptoms / Yi Fan Liang and Jacqueline Denyer -- Haematological symptoms / Mei-Yoke Chan -- Palliative care for children with hiv/aids / Michelle Meiring and Rene Albertyn -- Care in the final hours and days / Dawn Davies and Rachel Parry -- Integrative medicine in paediatric palliative care / Angela M. Johnson and David M. Steinhorn -- Place of care / Jan Vickers and Jody Chrastek -- Intensive care units / Brian Carter and Finella Craig -- The good-enough health care provider / Danai Papadatou -- Education / Linda Ferguson, Susan Fowler-Kerry and Richard Hain -- Quality improvement / Javier R. Kane and Justin N. Baker -- Research in pediatric palliative care / Joanne Wolfe and Hal Siden -- International aspects / Joan Marston and Lizzie Chambers.
Other title(s)
  • Palliative care for children
  • Textbook of palliative care for children
  • 9780199595105
  • 0199595100
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