So much to be done : the writings of breast cancer activist Barbara Brenner / Barbara Brenner ; edited by Barbara Sjoholm ; introduction by Rachel Morello-Frosch ; afterword by Anne Lamott.

Author
Brenner, Barbara A. [Browse]
Format
Book
Language
English
Published/​Created
Minneapolis : University of Minnesota Press, [2016]
Description
281 pages ; 22 cm

Details

Subject(s)
Editor
Library of Congress genre(s)
Getty AAT genre
Summary note
  • "Collected in the book, and framed by personal accounts of Barbara and her influential work, Brenner's columns and blog posts form a chronicle of breast cancer research and health care activism that is as inspiring as it is informative. As she takes on the corporate forces at work in breast cancer research and treatment and in the 'pinkwashing' of fund-raising for the cause, Brenner, a self-described hell-raiser, contends with cancer herself, twice, and her words offer understanding and encouragement to all those whose lives are touched by the disease. When Brenner was diagnosed with ALS in 2011, she broadened her critique of health care while also writing about her own experience. Infused with her characteristic moxie, humor, anger, and compassion, these reflections from her last two years provide an in-depth, precisely observed portrayal of what it is to live with a terminal disease and to die on one's own terms."--Provided by publisher.
  • "'What kind of cancer is it?' was the first question Barbara Brenner asked her doctor after hearing that the lump in her breast was malignant. His answer: "You don't need to know that." Wrong response. Brenner, who was already an activist, made knowing her business and spreading knowledge her mission. The power behind Breast Cancer Action and its transformative Think Before You Pink® campaign, Barbara Brenner brought an abundance of wit, courage, and clarity to the cause and forever changed the conversation. What had been construed as an individual crisis could now be seen for what it was: a pressing concern of public health and social justice, with environmental issues at the center of prevention efforts. Collected in So Much to Be Done, and framed by personal accounts of Barbara and her influential work, Brenner's columns and blog posts form a chronicle of breast cancer research and health care activism that is as inspiring as it is informative. As she takes on the corporate forces at work in breast cancer research and treatment and in the 'pinkwashing' of fund-raising for the cause, Brenner, a self-described hell-raiser, contends with cancer herself, twice, and her words offer understanding and encouragement to all those whose lives are touched by the disease. When Brenner was diagnosed with ALS in 2011, she broadened her critique of health care while also writing about her own experience. Infused with her characteristic moxie, humor, anger, and compassion, these reflections from her last two years provide an in-depth, precisely observed portrayal of what it is to live with a terminal disease and to die on one's own terms."--Publisher's description.
Bibliographic references
Includes bibliographical references and index.
Contents
  • A Portrait of Barbara Brenner / Barbara Sjoholm
  • Introduction: Barbara Brenner, Breast Cancer Action, and the Birth of a Politicized Breast Cancer Movement / Rachel Morello-Frosch
  • Part I. Building a Movement, 1995-2010. Hope, Politics, and Living with Breast Cancer
  • Loss and Inspiration
  • Let Them Lick Stamps
  • Fiddling While Rome Burns: The Latest Mammogram Controversy
  • Reflections on a Handmaid's Tale
  • Words Matter
  • My Sister's Keeper
  • Educate, Agitate, Organize--Now!
  • One Pill Makes You Smaller ...
  • Thinking Out Loud: Toward a New Research Strategy
  • Rolling the Dice
  • Respecting the Past, Creating the Future
  • Making Choices
  • Living on the Edge
  • Breast Cancer Treatment: Promise versus Reality
  • Exercise Your Mind
  • The Crazy Days of Autumn
  • Lessons from Long Island
  • Waging War, Making Connections
  • Solving the Breast Cancer Puzzle: Advancing the Research Revolution
  • Forests and Trees: Reflections on Pink Bracelets and Narrow Visions
  • Fifteen Years of Activism: Standing on Many Shoulders
  • Era of Hope, Hype, or Hoax: Is It Time for Change in the DOD Breast Cancer Research Program?
  • Meaningful Results: Getting What We Need from Science
  • BCA's Survey on Aromatase Inhibitors: Meeting the Needs of Patients
  • Moving beyond the Personal in Environmental Health
  • Putting Patients First: The Need for Better Standards at the FDA
  • The Organic Process of Activism: Think Before You Pink®, Then and Now
  • Breast Cancer Awareness Month: The Present Looks like the Past
  • So Much to Celebrate, So Much to Be Done
  • g Part II. Thoughts on Dying and Living, 2011-2013. Don't Ask Me How I Am
  • Patient? Who's Patient?
  • Don't Make Promises You Can't Keep--Especially in Health
  • Isn't It Time to Change the Message?
  • Uncertainty, a Teaching for Rosh Hashanah 5771
  • A New Name
  • Passover
  • There's That Person with ...
  • The Obligation of Privilege
  • Can and Can't List
  • That's Why They Call Them "Trials"
  • People's Lives as the Endpoints of Medical Research--Now There's a Nifty Idea
  • Understanding Health Numbers: Not Easy, but Important
  • Having a Voice, Communicating, and Somewhere in Between
  • Walk for Your Health, but It Won't Help Anyone Else's, Much
  • Thoughts on Dying and Living
  • How Do You Spell Chutzpah? K-o-m-e-n
  • Drug Development and Access: Time to Act like Lives Depend on It
  • Science by Press Release--Not Good News for Patients
  • Health Activism--Not for the Faint of Heart
  • Pink Ribbons and Lou Gehrig: Time to Bury Useless Symbols
  • Mi Shebeirach: Thoughts on Illness and Blessing
  • Is October over Yet?
  • Labyrinth
  • IOM Report on Breast Cancer and the Environment: What Komen's One Million Dollars Bought
  • Gloves Off: What the Fuck, Komen?
  • Yosemite
  • Smith College Medal
  • Context Is Everything: Framing the Film Pink Ribbons, Inc.
  • Choices: How I Live with ALS
  • Thoughts on Leadership--Listen Up, Nancy Brinker
  • Point Reyes
  • Changing the Culture of Health Care in a Consumer Society--Not So Easy
  • Whatever Happened to Previews of Coming Attractions in Health?
  • Susan Love: Time to Think before You Pink
  • Who Shall Live and Who Shall Die? A Yom Kippur Reflection
  • NBCC: The Promise, the Process, and the Problems
  • Winter Weather
  • What I Learned as a Volunteer
  • January 19, 2013
  • February 11, 2013
  • Thanks and Blessings
  • Afterword / Anne Lamott.
ISBN
  • 9780816699438 ((hardback ; : alk. paper))
  • 0816699437 ((hardback ; : alk. paper))
  • 9780816699445 ((pb ; : alk. paper))
  • 0816699445 ((pb ; : alk. paper))
LCCN
2015049869
OCLC
928613612
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